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Moms Story – A Child Learns About MS

Title: Mother’s Story – A Child Learns About MS

Author: Mary Jo Nickum

Publisher: Chalet Publishers, LLC

ISBN: 978-098408365-7

Mother’s story it’s a quick and easy read. It is a story about a nine-year-old who learns that his mother has Multiple Sclerosis (MS). The book delves into the process involved from the first symptoms to a diagnosis, all while describing the emotions and reactions of the main character as well as those of his siblings. The family goes from the initial fear that is common when a loved one is diagnosed with MS, to learning about the disease. Knowledge about MS goes a long way to allaying those initial fears.

As the child learns about MS, Nickum cleverly weaves in bits of information about how to get help online for those interested in learning about MS. In addition, at the end of the book the author includes a section entitled Information Resources for Families. These pages contain additional sources of information in the form of websites, books, videos, and DVDs that aid in the understanding of MS.

The education doesn’t end there though, there are a number of other features in the mother’s story that help with understanding a child’s MS. With simplicity, Nickum incorporates the pronunciation of technical words associated with MS into the story. Words like optic neuritis (op-tik nur-I’-tis), and demyelination (dee-mi-lin-A’-shun) are again written in parentheses to break up the word for easy pronunciation. This is a wonderful tool for children and adults because some of the words are difficult to pronounce. The author has also included a glossary. Words like Central Nervous System (CNS), MRI (Magnetic Resonance Imaging), and Myelin are explained in a way that children will be able to understand.

In addition, Nickum includes pages for information on MS, Types of MS, Symptoms of MS, and What is an MRI? The symptom page is actually the only aspect of the book that I question – the symptoms of MS did not include fatigue which is a very common complaint with MS sufferers. It was, however, mentioned in the story itself.

Mother’s story is a 74-page book that takes a child, through the voice of a nine-year-old, on the path to understanding MS. As a person suffering from MS, I know that any life-changing and disabling chronic disease is difficult to deal with, for the patient and their family. Nickum has managed to deliver a very informative and engaging book that handles a complex subject very well with easy to understand content. I highly recommend Mother’s Story – A child learns about MS.

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